Live with a chronic condition as everybody knows it’s a rough thing. When as a patient you are involved in that way, life became stranger than you might not have thought.
The term “ePatient” represents a big responsibility and a lot of times you became an “ePatient” not because your doctor will have to be taught you but because you need to continue living with the best possible quality of life.
To a sport psychologist, health could be an irrelevant topic, performance it’s the main issue, but when you are a Chronic illness patient and combines that condition with the field of sports psychology a lot of things are better understood; this paper it’s named “Dancing with the chronic illness” because you need to flow as in sports or dance, both need to achieve a goal, in this case health doesn’t needs a championship but the best quality of life as possible.
Someone experiencing an invisible chronic illness or just a chronic illness lives a lot of psychological phases. This data it’s incredible relevant if you are a doctor, psychologist, nutritionist, etc., because in the most of the cases when the patient is in time to get diagnose the doctor it’s the first to explain the consequences of the illness, the needs involving meds and some cares but the reality of the new life that begins it’s an incredible challenge and maybe the most recognizable difference between the adherence or failure of the treatment, the understanding of the importance to becomes an ePatient and the needs who emerges from your family, caregivers, etc.
One of the most important issues in the invisible illness it’s you don’t look sick, should happens almost at all the times and more of all when the ill it’s related with psychological foundations such as Fibromyalgia, Post Traumatic Stress Disorder or Fatigue Chronic Syndrome, the tests are completely fine, the pain it’s present and all the symptoms increases, so looks like you must be inventing your illness.
In my own experimented time as an underdiagnosed girl but related with Fibro, FCS or PTSD I had to cope and get the best life style as possible. Flow it’s the word and you should be like dancing because the strategies every time needs to bring you control and the possibility to get helped by your multidisciplinary team.. The model it’s an approach to understand the faces covered to cope with an invisible illness by an ill. Pills are not enough… a change of life style.
Always involved surrounding the process are the closest important actors: Couple, Family, Friends, Working partners or Multidisciplinary team… everyone helping to prepares you to your best challenge: “have the best life style as you can” and live flowing even with your illness.